FASD Advocacy Day 2020

We are hosting an advocacy day a month ahead of FASD Awareness Day (September 9th).  Post on your personal and business social media tagging important players in your community and your legislators.  I'm also going to write a handwritten letter and mail it TODAY.  Click here for more information about writing to your legislator.  If you would like a daily email with updates about the project, register here.  I recommend you schedule these posts on a free scheduling app like Hootsuite.  It is a 6-day campaign. We can do this!

Day 1 - August 5th

Google Drive of Pictures

myth1_igfb (1).jpg

August 5, 2020

Myth #1 - IG/FB Feed

Myth: FASD is rare.

Fact: A 2018 study found that #FASD affects 2-5% of US children.  The not-so-conservative estimate was 3-10%.  FASD affects everyone.  Everyone knows somebody.  But in that same study, only 1% of the kids they found met criteria were already diagnosed.  Now knowing that, are you #FASDaware?

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The reason FASD is so important to me is:

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#FASD #myth #disability #disabilityrights #disabilityawareness 

myth1_story (1).jpg

August 5, 2020

Myth #1 - IG/FB Story

Add text about your reason WHY in your story.  Use #FASDaware.

myth1_twitter (1).jpg

August 5, 2020

Myth #1 - Twitter

#Myth: FASD is rare. Fact: A 2018 study found that #FASD affects 2-5% of U.S. children. | Are you #FASDaware?

 
 

Day 2 - August 6th

  Google Drive of Pictures

myth2_igfb.jpg

August 6, 2020

Myth #2 - IG/FB Feed

Myth: FASD is caused by binge drinking.

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Fact: Even small amounts of alcohol before a woman knows she is pregnant has been shown to affect the fetus.  The reality is there is no known safe amount of alcohol during pregnancy. Actually, alcohol is more dangerous to a developing fetus than drugs.  These facts alone means most of our society is not #FASDaware.

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The reason it is important to understand this is:

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#FASD #myth #disability #disabilityrights #disabilityawareness #drinking #alcohol #bingedrinking #maternalhealth #pregnancy

myth2_story.jpg

August 6, 2020

Myth #2 - IG/FB Story

Add a story about how you didn't realize this. Use #FASDaware

myth2_twitter.jpg

August 6, 2020

Myth #2 - Twitter

#Myth: FASD is caused by binge drinking. Fact: Even small amounts of alcohol before a woman knows she is pregnant has been shown to affect the fetus. There is no safe amount of alcohol during pregnancy. | Are you #FASDaware?

 

Day 3 - August 7th

 Google Drive of Pictures

myth3_igfb.jpg

August 7, 2020

Myth #3 - IG/FB Feed

Myth: Individuals with FASD have a low IQ.

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Fact: A study found that 70% of kids with an FASD had an IQ of 70 or higher and therefore rarely qualify for DD services or the help in school that their disability warrants.  This is commonly misunderstood because our brains work so many different ways.  Brain differences can be executive functioning or mood regulation or memory.  Now you are one step closer to being #FASDaware.

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What I've learned about the brain is:

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#FASD #myth #disability #disabilityrights #disabilityawareness #neurodiversity #neurodivergent #executivefunctioning

myth3_story.jpg

August 7, 2020

Myth #3 - IG/FB Story

Add a story about the coolness of FASD brains. Use #FASDaware

myth3_twitter.jpg

August 7, 2020

Myth #3 - Twitter

#Myth: Individuals with FASD have a low IQ.  Fact: A study found that 70% of kids with an #FASD had an IQ of 70 or higher and therefore rarely qualify for DD services or the help in school that their disability warrants.

 | Are you #FASDaware?

Day 4 - August 8th

  Google Drive of Pictures

myth4_igfb.jpg

August 8, 2020

Myth #4 - IG/FB Feed

Myth: You can't diagnose an FASD without confirmed prenatal alcohol exposure.

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Fact: Two of the 5 possible diagnoses in the U.S., one of them can be diagnosed without confirmed PAE.  Fetal Alcohol Syndrome and Partial FAS (pFAS) have very specific requirements that, when all are met, point to PAE without needing confirmation. Who can you help become more #FASDaware?

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What I have learned about the diagnostic procedure is...

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#FASD #myth #disability #disabilityrights #disabilityawareness #fostercare #adoption

myth4_story.jpg

August 8, 2020

Myth #4 - IG/FB Story

Add a story about why doctors need to know this. Use #FASDaware

myth4_twitter.jpg

August 8, 2020

Myth #4 - Twitter

#Myth: You can't diagnose an #FASD without confirmed prenatal alcohol exposure. Fact: Of the 5 possible diagnoses in the U.S., two can be diagnosed without confirmed PAE. | Are you #FASDaware?

 
 

Day 5 - August 9th

  Google Drive of Pictures

myth5_igfb.jpg

August 9, 2020

Myth #5 - IG/FB Feed

Myth: An FASD diagnosis is an unhelpful label.

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Fact: Diagnosis of FASD allows a person to receive services and support. Without a diagnosis, the person is often blamed for their symptoms rather than accommodated.  The idea that it is an unhelpful label is from the stigma that we place on it.  We need to make FASD less shame and more empowered! How can you help remove the stigma by making people more #FASDaware?

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I believe FASD should be destigmatized because:

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#FASD #myth #disability #disabilityrights #disabilityawareness #stigma #ableism

myth5_story.jpg

August 9, 2020

Myth #5 - IG/FB Story

Add a story that goes against the stigma of FASD. Use #FASDaware

myth5_twitter.jpg

August 9, 2020

Myth #5 - Twitter

#Myth: An FASD diagnosis is an unhelpful label.  Fact: Diagnosis of #FASD allows a person to receive services and support. Without a diagnosis, the person is often blamed for their symptoms rather than accommodated. | Are you #FASDaware?

Day 6 - August 10th

  Google Drive of Pictures

areyoufasdaware_igfb.jpg

August 10, 2020

THE DAY - IG/FB Feed

For the last 5 days I have been sharing facts about FASD.  I have done that leading up to FASD Advocacy Day today.  Today I will be calling and emailing my legislator about the ways we can stand up for FASDs.

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Some big goals we have are to ensure there are mandatory warning signs in each establishment that sells alcohol, required screening for foster youth, and required training for foster parents on FASDs.  We also want to see observance of FASD Awareness Day on September 9th.

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I am calling up: 

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Who else should I contact about making someone #FASDaware?

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#FASD #myth #disability #disabilityrights #disabilityawareness #legislation #government #representatives #senators #congress

areyoufasdaware_story.jpg

August 10, 2020

THE DAY - IG/FB Story

Tag your representatives and other local leaders who should know about FASD. Use #FASDaware

areyoufasdaware_twitter.jpg

August 10, 2020

THE DAY - Twitter

Today is #FASD Advocacy Day leading up to FASD Awareness Day, Sept 9. I am tagging individuals who can make a BIG change in the lives of those with FASD. | Are you #FASDaware?

 

Great job!

 

Now it's time to call our legislators. Letters and emails are good, but phone calls mean a lot.  Here are links to look up your representative's phone number and email address and a script and email template.

Email Template: Ohio (google doc/word) / Other States (google doc/word) / Example

*To edit the google doc, save a copy in your own google drive.

IF YOU ARE FROM OHIO

Remember to mention Senate Bill 340 about displaying warning signs for Fetal Alcohol Syndrome if an establishment sells alcohol.

Community Member: Hello, I am a constituent of Senator/Representative ____________ and would like to make a comment to them about Fetal Alcohol Spectrum Disorders.

 

Legislative Secretary: Certainly. I can transfer you. (Or they may be able to help you.)

 

Community Member: Thank you. My name is _______________, and I live at (full address). I’m calling to urge Senator/Representative ________________ to acknowledge Fetal Alcohol Spectrum Disorders. I am a caregiver of somebody on the spectrum./I am a professional working with individuals on the spectrum.

Fetal Alcohol Spectrum Disorders are the most common form of developmental disabilities in the United States making it 2.5 times as common as Autism, yet there are virtually no services or support.  Science shows us that undiagnosed FASD and individuals with FASD who don't receive accommodations are more likely to be involved with the criminal justice system, foster care, and the cycle of addiction. Many scientists believe that undiagnosed FASDs are a big contributing factor to the opioid crisis.  I want to make a difference and I think we can do that together.  I am asking your office to:

- Release a press release, public service announcement, or make a declaration in honor of FASD Awareness Day, September 9th

- Discuss the possibility of proposing a bill requiring annual training about FASDs for foster parents because foster youth are 17-19 times more likely to have an FASD than the general population.

- Discuss the possibility of proposing a bill requiring screening of all foster youth for FASDs.

Legislative Secretary: I will give your message to Senator/Representative _________, would you like for him/her to send a response to you?

 

Community Member: Yes, please send a response by email at (your email address) or by phone at _______. Thank you for your time!

info@aubreypage.org

513.549.1883

Based in Cincinnati, but can be anywhere online.

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©2020 by Aubrey Page. Proudly created with Wix.com

Educating communities about the impact that Fetal Alcohol Spectrum Disorders have on society and partnering with families to help them be successful.